WHY IT MATTERS
Comprehensive, high-fidelity, patient-level data is critical for assessing disease burden and generating insights that drive evidence-based medicine. Incorporating clinical and patient-characteristic data (e.g., lab, genomics, race and ethnicity) ensures a holistic and accurate view of the patient.
CHALLENGE #9
HEOR Studies
>50% of teams report these 8 "significant to very significant challenges" impede research:
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Linking claims data to specialty, proprietary, or other external datasets
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Avoiding regional bias
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The legal process for procuring data
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Timely data delivery
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Seeing the complete longitudinal view of the patient
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Receiving support with analyzing/working with data
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Seeing robust patient coverage, including genomics and biomarker data
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Obtaining patient mortality data
What’s behind the challenge?
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Proprietary (vs. ubiquitous) tokenization makes data linking extremely complex and fraught with pitfalls
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Lack of access to high-fidelity data that accurately reflects the patient population by geographic region
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Data silos that require teams to identify and assess data sources, initiate multiple contracts, and manage multiple vendors
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Using data that does not capture multiple years of the patient journey
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Purchasing data cuts on the marketplace vs. working with a data partner that provides thought leadership support
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Using data that doesn’t include both closed and open claims or integrated specialty data